MPS is a rare genetic mutation in the gene code. It begins by attacking the skeletal system, eventually moving onto the cognitive and central nervous systems. Diagnosis is fairly simple; all it takes is a blood and urine sample. If this test was administered at birth, therapy could be started much earlier and the children in treatment would have a much higher success rate. The life expectancy of a child with MPS is between 10 – 15 years old but that age could increase significantly by adding it to the newborn screening. Currently, only 53 rare disorders are tested for at birth out of as many as 8,000, but even that number varies based on the state you are born in. Adding MPS to the newborn screening would give these children a better fighting chance to counteract its degenerative effects. It is progressive and incurable; thus enzyme replacement therapy is the only way to slow it down. It is vital for treatments to begin as early as possible because once the disorder gets to the brain, there is nothing that can be done and the patient loses all cognitive functioning. Educating the public on MPS is where we choose to begin our fight. The rarity of this disorder makes it virtually unknown in society. This means very little research is being done into a cure, or even treatments to slow its progress. It also means nothing can be done to make sure it is caught early enough. Getting the word out about MPS is a great start but we need your help to actually make change happen.